Days 2017

Days 2017

Monday, October 1, 2012

Boy meets World

Luke Newel Day arrived last week, born at the University Hospital as scheduled, only a week and a half early.  He was 8 lbs, 5 oz, 20 inches long.  Mark was sure to wear blue so he wouldn't get confused about our family's loyalty.  (Mark considered wearing his favorite "Saturday is a Special Day" T shirt since Luke is our "Saturday" for our week of Days, but then Mark realized that he always wears that shirt when our kids come and he has too many hospital pictures of it anyway.
I don't have time to add many pictures now since they are mostly still on Mark's phone.

Luke has a heart defect that we have known about since June.  The general term for what he's got is "Hypoplastic Right Heart", which basically means that his right ventricle, the one that pumps blood to the lungs, didn't develop. He had his first heart surgery on Friday, a procedure called the BT Shunt where they put a little rubbery straw in to get some extra blood flow going to his lungs.  They did open his chest but not his heart, so technically it was not open-heart surgery.  Before surgery, while on meds to keep the little extra routes open to his lungs that usually close up on a baby after birth, he was doing well, not on oxygen, etc., and I was even able to practice breastfeeding him a few times as long as my milk wasn't in because they needed to limit how much was in his stomach.  (I guess if your belly is full, all your blood goes there and it messes up what they were monitoring.  Think of how sleepy you are after Thanksgiving dinner.)

His surgery went really well--the surgeon said it would take 2-5 hours and it only took around 2.  The Doc was really pleased with how everything went.  This surgery should last him 4-6 months until he outgrows his shunt and needs a more major procedure.  Then there will be a third major operation when he is age 2-4.  The second and third procedure kind of bypass the right ventricle and recirculate the blood so that the left ventricle does all the pumping.  His right ventricle will just be ignored for the rest of his life and his oxygen levels will probably not be fabulous for the rest of his life either, (kind of a silly thing to say with the way the medical field progresses...) but he probably won't really notice it.  (The doc said it will probably stay at 75-85 % oxygen saturation the way healthy folk are at about 95% or higher.)  To put it in lay terms, the doc said if he plays soccer he'll be the goalie.  Mark said, "That's ok, I'm a baseball guy."  The doc says baseball will be just fine.  Outcomes are really good for these surgeries; they've been doing them since the 70's and the people who got them back then are still around and doing well.

Yesterday when we went to visit, two days into post-op, he passed a big milestone and was breathing well enough on his own to get his breathing tube out.  He was also very awake and alert, so we had to take some video to show the kids.  I know the tubes and stuff look scary, but mostly they are monitors with the exception of the chest tube that drains his wound.  He's not even on a catheter or oxygen.  (I know this is probably not very nice of me, but it helps me to not be scared when I walk down the hall and see the other babies.  Luke looks pretty hardy compared to a lot of them.)

Mark and I still feel really good about everything.  I missed most of church yesterday but I guess there was a lesson about trials.  Mark made a comment about the topic of why do bad things happen to good people.  He said that so often when we talk about trials we forget to notice that there is always so much good going on even in the midst of the hard stuff--so many things to be joyful about that I think the Lord gives us to kind of compensate.  We feel pretty joyful right now and every day has really actually been a good day.

Thanks again for all of the love, prayers, and concern.

1 comment:

Wendi said...

So glad he is doing well. You are in good hands! We loved our NICU family.

And so true about good going on amidst the trials!

You are in our thoughts and prayers!